
Many thoughts have gone through my head after reading the comments from my last post.
One such thought has to do with comments made by those who have loved ones in nursing homes, and the angst they felt. In some cases I sensed there was a component of guilt and for others a sense of loss. In my training and experience as a nurse both those feelings are very legitimate for the families and for the loved one moving into a nursing home.
There is a huge adjustment period that takes place for all. If you have ever read anything by Kubler-Ross, you will recall the 5 stages of grief. Generally these stages are used when referencing death of a loved one, but they can also be used to reflect the loss or ending of an event or stage in one's life, some call this a "change model". In the case of moving a loved one from the family home to a nursing home, those involved may experience some if not all of these stages of grief and loss. The 5 stages that Kubler-Ross identifies are denial,anger,bargaining, depression and acceptance. Now this does not mean that everyone will experience these stages and they most certainly do not have to experience them in any set order.
Some may go right to acceptance....but in my experience I have not seen that, often it is the anger, then bargaining, then depression and finally acceptance...but again there is no set order.
From a personal experience, it was the most heart wrenching thing having to move my mom into a home....but even with all of the supports we had put into place for her at home, she was still not safe....and safety was paramount.
I can not speak for how the process works in other countries but where I live there is a very long waiting list for nursing homes...so when someone is identified as needing to be "placed" in a nursing home, the families are told to go out and pick at least 3 facilities that they believe would be suitable for their loved one. Mom ended up at our 2nd choice facility. Although the staff were very nice and accommodating, mom had to share a room....we felt awful about that...it's not what we wanted at all. Long and short of it, a room became available at the facility that we thought would be best suited for mom and was in close proximity to family so we could visit her easily. This was a multi level facility. What that means is, if the individuals condition changes so does their level of care. This meant another move for mom, but it is what we thought would be best for her in the long run.
Through the adjustment period, mom thought she was just visiting and often asked when it was time to go home. Mom presented as being high functioning, but she required allot of redirecting and prompting. On one occasion mom thought she could go take the bus and go home...she wondered off....police where called...mom had gone missing for four hours....my sisters and I searched the alleys, asked people on the street if they had seen her....you can't imagine the guilt and worry we all felt. She was finally found....cold and wet...she had walked and finally got tired and just sat on someones door step....they brought her in gave her some tea and called the police....the police brought mom back....I was in tears....how could this happen....after that mom had to wear a device around her ankle so if she wondered near any of the exit doors an alarm would sound. That was one of the adjustment periods, and a terrible time for all of us. Mom although suffering from dementia was going through anger and denial. Anger because she wanted to be in her home with all of the things she remembered and denial because she didn't realize that she could no longer safely care for herself. Unfortunately that was not the end of incidences with my mom. In the first 6 months she had managed to wonder off, and fall and break her hip. It was finally determined that mom would benefit from being on what we reference as a "Special Care Unit". This unit is a unit where all of the residence are at varying stages of their dementia and or Alzheimer's. The wonderful thing about this unit, mom finally felt secure and safe. She slept better, she was cooperative with staff....the staff were wonderful with mom.....we finally got to acceptance both for mom and for the family.
For those of you who have gone through this know exactly what I am talking about, for those of you who might have to deal with this in the near future, try not to take it personally. You are doing what is in their best interest. The anger is natural. Think about it, how would you feel if all your life's possessions are taken away and you are left with a few tokens for memories of what your life use to be. It can be a very difficult process but there are many things that you can do to help minimize the stress. While your parents or loved ones are of sound mind, ask them what it is they want, where they would like to be....as things progress you can have them participate in the search for their new home....you can take them there for tea and check out the facility....meet with the staff, see what activities the facility has to offer and one day take them their to participate in the activity. There will always be an adjustment period....be honest with your feelings...and allow them theirs.....but redirecting them doesn't hurt either.
I went to go visit the gentlemen yesterday that I spoke about in my previous post. He wasn't there, he was out with his son. However, while I was finding this out one of the other residents took a liking to me and she wanted me to walk with her. We walked the halls more times then I can remember, but what was great about that is that others joined in...before you knew it we had our own little walking group. After an hour or so of walking the halls I decided it was time to sit in the big hall and just relax and maybe try some singing....well it was only suppose to be this lady and I...I started singing....next thing you know the nurses and care aides were bringing other residence around and before you knew it there was about 12 residents there....so there I was trying to sing songs that I thought they might be able to participate with...it was a hoot....I attempted to get them to sing the "hokey poky" with me having them do the movements as well....yes it was great fun. I saw that they had a CD player...thank god I can stop singing.....I found some upbeat Irish music.....so for those residents that were wheelchair bound I danced with them moving their arms and encouraging them to move their legs while they sat....finally some of the frowns were turned upside down and some who weren't enjoying things at the beginning finally started to smile. I really didn't go prepared to be singing or dancing with them.....next time I think I will have to bring some song sheets so I will know the words to some songs they can join in with.
As a volunteer there are some many things you can do. I have opted to do what I do as it is familiar to me as well as it is something I feel passionate about. The opportunities for volunteering are endless...remember it can be as much or as little as you like.
For me being a full time shift worker I volunteer when I can. The bonus to working with the folks that I do, they wont' remember me, so I will always be a new face to them....and the other bonus for them is they won't remember my terrible singing........LOL!